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Anatomía de Piruleto

22 enero 2010 - 1:26 - Autor:

“No soy Fernando, soy Piruleto”, es lo primero que me dice Fernando Martínez Alvite en la puerta del Hospital Niños Jesús, en Madrid. Piruleto está esperando, hoy tiene cinco ingresos de chavales y él será el anfitrión, les recibirá y acompañará a su habitación. El objetivo es que el primer contacto del niño y de la familia con el hospital no sea muy traumático. A las 18 llega Jesús, 18 meses, acompañado por su padre y su madre. Piruleto empieza su juego “Bueno, ¿quién ingresa? Tú (señala al padre) pues vámonos a la habitación”. Jesús está asombrado, asoma una sonrisa mientras mira sin parar el manguito que Piruleto tiene en el brazo.

Piruleto en la puerta del Hospital Niño Jesús

Piruleto en la puerta del Hospital Niño Jesús

Fernando lleva 14 años ilusionando a los enfermos del Niño Jesús y del Doce de Octubre. Desde el 2005 lo hace como Piruleto. En ese año fundó la asociación El Circo de Piruleto, que hoy cuenta con 58 voluntarios. Fernando, 39 años,  informático, dedica dos tardes a la semana a su personaje ( y muchas noches a llevar la gestión de la asociación, que no tiene ningún patrocinador/financiador).  Afirma “estar enganchado”.

Yo recibo infinitamente más de lo que doy. Entro en una habitación y veo cómo a un niño le cambia la cara con un simple juego de magia, eso es tremendo. Hay días que no puedes salir por la puerta de lo ancho que vas.

La historia de Fernando es excepcional. Con 13 años estuvo en el Ramón y Cajal tres meses, sufría un tumor cerebral.  La operación o la biopsia, no lo tiene claro, le transformó. Entró siendo un niño muy tímido, que no salía de la habitación, haciendo sopas de letras todo el día y, tras la operación, era otro, iba de habitación en habitación, quería hablar con todo el mundo, saltar, jugar, compartir.

No sé porqué. También, después de la biopsia, me tocaron el nervio óptico y soy estrábico y tengo doble visión. Igual que me tocaron el nervio óptico, me debieron tocar el de la sensibilidad.

Fernando sabe por experiencia que la actitud de los padres cuando un niño ingresa es fundamental. Afirma que la mayoría no paran de sonreír y de mostrarse tranquilos mientras están con su hijo, aunque luego, algunos, al salir, se derrumban.

Yo estuve ingresaso tres meses y siempre vi sonreir a mis padres. Luego me enteré de que mi madre, cada vez que salía de la habitación, se ponía a llorar.

Fernando, al igual que contaba El cocinero de los cuentos, tiene muy claro que, con los familiares, antes escuchar que hablar.

No soy psicólogo, antes alguna vez cometía el error de dar esperanzas, pero tampoco puedes, no puedes decir “No te preocupes, que todo va a salir bien”, porque no lo sabes. Desde hace años no hago pronósticos.

Su primer contacto con la realidad de los hospitales fue con 13 años y su primera experiencia de voluntariado y acompañamiento llegó a los 17. El padre de un amigo conoció en la UCI del Ramón y Cajal a un chaval gallego, Bertín, que tenía un tumor y estaba muy asustado. Le pidió que fuera un día a charlar con él, a contarle su experiencia, a darle aliento. Fernando se encontró a un chaval postrado: al tratar de extirpar el tumor le dejaron prácticamente parapléjico, no podía mover el cuerpo, solo los ojos y apenas respirar, porque tenía una traqueotomía.

Yo no me esparaba eso. Fui un día y no pude dejar de ir (fue a verle dos veces a la semana durante un año). Fue asombroso cómo remontó, consiguió rehabilitarse y el último día, antes de irse, estábamos bailando.

A Bertín se le reprodujo el tumor y falleció poco después. Fernando lleva mucha tralla encima, muchos años de vivencias y experiencias, y se nota. Habla con tranquilidad y demuestra recursos con cada nueva familia que llega al hospital. Acompañamos a Daniel, un niño de 5 años que viene de Segovia con sus padres. Piruleto les cuenta los servicios del hospital (teatro, juegos…)  y antes de entrar al ascensor, se estampa contra la pared, Daniel ríe.

Lo importante de un voluntario es que tenga soltura y recursos, porque en las visitas por habitaciones no sabemos la edad, ni la enfermedad, ni qué te vas a encontrar… Al principio puede impresionar, por eso les digo que consideren la enfermedad como una cualidad del niño. Igual que tiene un lunar, tiene una cicatriz.

Los voluntarios realizan las acogidas. Y es evidente que para cualquier niño es más agradecido encontrarse a un payaso o a una vaca (otro de los personajes de la asociación) que a un señor vestido con una bata blanca (con todo el respeto para los celadores). Mientras charlamos en los pasillos, un padre se acerca a Piruleto y le pide si puede pasar por la habitación de su hija.  Piruleto no deja de asombrarse ante la capacidad de los niños para sobreponerse a su propia enfermedad e, incluso, bromear sobre ella.

Un día iba con un chaval, oncológico. Le llevaba su padre en una silla de ruedas porque le habían amputado la pierna por debajo de la rodilla. Yo iba con el martillo de jueguete y de repente, al ir a darle, me dijo “dame aquí (señalando donde no tenía pierna)” di en la silla y comenzó a reír “No me has dado, no me has hecho daño”.

Es una suerte saber que si, algún día, tengo que llevar a mi hija al Niño Jesús, me estará esperando Piruleto y su Circo.

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Qué valor. Menos mal que hay Fernandos por el mundo… enhorabuena por el trabajo que realizan.

Han operado a mi hija en dos ocasiones en el Niño jesús, tiene 4 años y siempre que hemos ingresado nos hemos encontrado con voluntarios del Circo Piruleto ¡Gracias!Porque realmente ayuda, hace más fácil un momento muy difícil

Enhorabuena Piruleto!!
Me alegro mucho de ver esta noticia. Hacéis un gran trabajo y, a pesar de que no es lo que buscáis, es maravilloso que se de a conocer.
Seguid así chicos y un beso fuerte para Piruleto, al que conozco desde el mismo día en que nació.

Enhorabuena Fernando por sacar adelante este proyecto y ser ejemplo para mucha gente. Y por descubrirnos un nuevo mundo y darnos vida cuando creimos que el mundo era un lugar sin esperanza…

me gusta mucho lo que hacéis y lo agradezco mucho porque hay niños que lo necesitan.
Gracias.

Mi mas cordial enhorabuena por el trabajo que realizas tanto tu, como todo el equipo que esta por detras, pues os lo mereceis. Seguir sacando esas sonrisas que tanto cuestan en un Hospital. Un abrazo magico. El cocinero.

Ser voluntario y trabajar con Piruleto te cambia la vida! y se la cambia a los padres y niños cuando les sacas esa sonrisa!! Enhorabuena Piruleto y sus voluntarios!!!!!

Mil gracias Piruleto por ser como eres. Gracias por habernos dejado conocerte. Gracias por no querer recibir las gracias. Gracias José Antonio por una entrevista cargada de sensibilidad. Sonrisas y MUACHI

Conocí el Circo de Piruleto hace bien poco a través de una de sus miembros (“Cascabel”) y me parece sencillamente maravillosa y loable la labor que hacen con los niños y niñas en ese hospital, de una forma tan amorosa como desinteresada. Enhorabuena a Fernando y todo el equipo en general y que podamos seguir disfrutando de gente tan desprendida como vosotros.
Una entrevista de una gran sensibilidad, gracias a su autor Jose Antonio Ritoré.

… por muchos años de Piruleto!! hip hip hurra!!!
¿existe algo parecido en Barcelona?… yo suelo visitar hospitales por mi trabajo y por ahora no me he cruzado a ningún payaso… quizás tenga que ir concretamente a pediatría.
besos,
Ana

[...] Fernando Martínez Alvite saber cómo sacar una sonrisa a un niño enfermo. Lleva 15 años ilusionando a los chavales del Niño Jesús y del Doce de Octubre. Desde el 2005 lo hace como Piruleto. En ese año fundó la asociación El Circo de Piruleto, que hoy cuenta con 58 voluntarios. Fernando, 39 años,  informático, dedica dos tardes a la semana a su personaje (y muchas noches a llevar la gestión de la asociación). Si tienes la desgracia de pasar por el Niño Jesús, pregunta por él al llegar. [...]

Gracias Fernando por habernos enseñado tanto, Un ejemplo a seguir. Es un orgullo haber formado parte del maravilloso Circo de Piruleto

Nunca olvidaré cuando piruleto entró una tarde de 2005 a mi habitación del 12 de octubre. Al principio yo estaba un poco reacia pero me animó muchísimas veces.
Me enteré de su historia ya siendo mayor y nunca sabré como agradecerle que existan personas como el y su equipo, muchas gracias y hasta siempre :)

yo estube en septiembre con mi hijo que le hicieron una astroscopia de rodilla y conoci a piruleto la verdad que el momento que esta contigo te estas riendo ahora vamos el jueves dia 10 y alli estara otra vez para recibirnos ahora no se el tiempo que estaremos es mas complicada la operacion . mi hijo tiene ya 15 años y se corta pero los padres nos sentimos diferentes con gente asi que te vaya a buscar cuando entras gracias a pirulete y sus compañeros

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No need to code up your landing page. Launchrock allow you to set up the same sharing mechanism with excellent referer data that you can slice and dice afterwards. Used it on many launches including the eBook launch of The Obree Way to great effect.LikeLike

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Guys,Love this write-up. One thing I noticed in the copy that two links are missing.In this paragraph you have the following text:>>When a referral—say, a friend of that first user—comes to the site using a unique link, we save it as a cookie we can use to find the email address responsible for the referral. For the engineers out there, you can see our engineering team’s explanation of the code here. As for the code itself, check it out here.Yet both of the links that say “here” and “here” are not linked. Would love to see those links. I know that the code itself was linked above by Tim in the sidenote, the Github link…but the explanation by the engineering team was not – unless it is further down in the article, which I haven’t finished reading yet. So if it is, I apologize in advanceLikeLike

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Dr. Joshua,Your app looks great! Did you deploy it yourself or did you outsource it? Also if you don’t mind me asking how to the back-end mechanics work? Where do the emails you gather go? How are discount codes generated?Thanks!TarikLikeLike

Awesome post, thanks for sharing. Loved how you have used the viral “referral” principles from Jonah Berger’s Contagious with a successful real world example.Reminds me of how Zappos started with their twitter strategy.Good luck to you in the future – not that you need luck!LikeLike

Do you have proof of that? Would be pretty eye opening to see that their success was mainly due to the expensive pressLikeLike

Again, it’s a case of who you know.While, it’s nice to share your methods, many sites have launched with referrals and most don’t do well, because they simply don’t have a team of people with friends and family that give a crap about what they do.What about the micropreneur, who’s family/friends don’t have a clue what they do? Think throwing up a referral site will do anything – Nope, again, they don’t know the right people in the beginning.These sites all work on the same simple principle – it’s all who you know.LikeLike

Great results with 100k emails in 7 days but it’s not the quantity but quality of emails that really matters. 10k quality emails could convert to more sales than 100k emails of mostly people who aren’t interested in the product. 1) Were these quality emails or people that mostly just wanted free stuff?2) How much did the campaign earn? “For example, some of our friends could reach entire companies. We’d ask people individually share Harry’s with their teams.” Most people don’t have access to CEOs. So I’m curious 3) How many companies were reached?4) How Big were they?.” These were largely people who were close to us with large followings or access to companies that sent out blasts on our behalf.5) How large were the followings? 50k 100k or more?6) How large were the company blasts?Tim, please tell us the answers.I would like to think the average person could get similar results by following this strategy but until we have the answers to these questions we won’t know if the average person would be lucky to get 100 emails or less in a week following this same plan..Until we have these answers (although it looks like a detailed plan of action to get approximately 100k emails in a week) it’s really just another general article that offers us potentially false hope.The title to this article makes it sound like you just plug in to the strategy and WALLA you have the magic recipe onHow to Gather 100,000 Emails in One Week (Includes Successful Templates, Code, Everything You Need)I really hope it is a real recipe for the average person with less resources and connections to get similar results. Please show us.LikeLike

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Guys,Love this write-up. One thing I noticed in the copy that two links are missing.In this paragraph you have the following text:>>When a referral—say, a friend of that first user—comes to the site using a unique link, we save it as a cookie we can use to find the email address responsible for the referral. For the engineers out there, you can see our engineering team’s explanation of the code here. As for the code itself, check it out here.Yet both of the links that say “here” and “here” are not linked. Would love to see those links. I know that the code itself was linked above by Tim in the sidenote, the Github link…but the explanation by the engineering team was not – unless it is further down in the article, which I haven’t finished reading yet. So if it is, I apologize in advanceLikeLike

Like the insights here – who wouldn’t want to get more customers, especially in the early stages. They are worth their weight in gold!LikeLike

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First of all, thank you for contributing this article (and to Tim Ferriss for posting it). I found it very helpful.Because I am always curious as to the other factors involved, would you be willing to elaborate on any other advertising you used during the pre-launch phase? You mentioned no PR push (which is interested and runs counter to a lot of advice you see coming out of YC and other startup advisors, although understandably also counter to you “ground-up” referral campaign). Still, really no Google AdWords, no social ads, no AdRoll or similar? Thanks again for writing this article. ~Elizabeth ChabeCEO, High Touch CoursesLikeLike

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If you click my name on the post above it will take you to our website. I did not mention the actual name in my post as this is primarily about Tim’s blog and Harrys code but since a few of you are asking..LikeLike

Wow guys! This is amazing! We’re just about to launch our new product (a sneaker discovery platform) and are using this to a build up our email database beforehand. By any chance would you be able to share with us the open and click through rate from the email list you generated? Also, if it’s not too personal the cost of the prizes that you gave away? We’re trying to work out how we can make this as cost effective for us as possible.LikeLike

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Durante más de 100 años la comunidad científica mantuvo un intenso debate sobre el origen y significado del altruismo hasta que en la década de 1.960, el biólogo William D.Hamilton creó una fórmula matemática que relacionaba el altruismo con el grado de parentesco entre el que da y el que recibe. Desde aquí nos proponemos poner a prueba esa ecuación al mismo tiempo que descubrimos a personas e iniciativas que luchan por sacar adelante causas sociales.